It’s December! Time to drink a nice hot chocolate, go for a walk in the snow, etc. Every year I really love the winter season because it’s so cosy and lovely (I just love watching the snow fall down). It’s so relaxing for me.
It’s kind of watching a lava lamp and watch the color fall down. As an autistic girl it’s so good to clear my head.
This year it’s so different. This winter loving girl is now wishing I was in Florida and could be in the sun all day.
Since a few months now I have some serious pain like everywhere in my body (neck, shoulder, arms, legs, feet, …). Just everything hurts, when I sit down, walk around, sleep.
Last week I went to my doctor and he took some blood to check if I had rheumatism. All test of the blood were negative, so regarding him everything was okay. He just send me home with some iron pills I have to take for 2 months.
I know it’s just a few days since I took the first pills, I feel more pain everyday. So horrible.
When I’m at work as a shoeseller I have to take 3 extra pills to get me through the day, and not make me cry because I have so much muscle strain.
I also feel like I’m having one migraine after the other. It’s so crazy.
Okay, I know it’s wrong to play for doctor by using Google. A few family members have some mucles problems and a few years ago before I was diagnosed with autism they thought I was having fybromyalgia too.
Fybromyalgia or not?
The next few weeks I’m going to wait how it all will end with the iron pills but I don’t expect a mirable from them.
A few of the symptoms above I have, but mostly it’s because of my autism. At least that’s what I always think. Others I just can say I have them since a couple of months (Yeah I know a long time but doctors are not my best friends).
One by one I just can say ‘YESSSSS, I have that’. So I end up with saying ‘yes’ to every single of the 25 mentioned above.
So why I’m I still sitting here and writing a blog with a lot of pain (toke 3 pills for the pain today)?
Everybody is saying ‘see another doctor’ but I don’t trust that much people to touch me and come close to me. I just can’t go to the hospital without preparation and knowing what will happen. So many stress I have from doctors, it’s just not normal anymore.
Guess I will be sitting here for a few months and just bite me through the days, and surviving on pain medication.
Life as a girl with autism is hard, so hard!
Anyone else that’s reading my blog that have to combination of #rheumatism or #fibromyalgia and have some tips? Tips like what have you done before the diagnose or what do you have to go through in the hospital to get the diagnose?
Thanks for reading ! Love Lucy xx