Blogmas 10 … the day after

Indeed the day after the big pary ! I wished I could spend it at my job, but I had a day off. So what have I been up to, the day after a long day for an autism girl???

I had sooooo much pain and had no energy

Morning

Arriving around 1.30 am this morning, oh yess it was morning again. So already here I am with blogmas part 10.

I woke up around 8.30am after beeing awake for more than 30 min. I couldn’t stand on my feet, I had to much pain on my muscles to move. So I had to stay in bed for a long time and reading all the new about the new that was coming.

After my pain was getting less I woke up and got some breakfast. Just an oatmeal chocolate milk and bread with chocolate. I was in the moode for chocolate this morning, I needed some sugar !

Plans after breakfast? Well, I went back to bed. I was feeling horrible, had a lot of pain so best plan was to get back to bed for the rest of the morning.

Afternoon

Around noon I had some time to spend with my 2 beloved cats #teddy and #blacky (blacky is the one with all the colors).

I’ve safed them from the snow outside !

When I first let them in, I guess there were singing …

Baby it’s cold outside

Oh I just love my 2 cats, can’t live without them !

OH RIGHT … THERE WAS SNOW ! THE FIRST REAL SNOW IN BELGIUM

Before noon it was snowing so much here in Belgium. It was so beautiful. Why ‘was’? Because it’s all gone sinds 2 pm this afternoon, when it started to rain 😥 So sad, I really like the snow and the cold.

Here are some pictures of our first snow

Looking at my Chirstmas tree and than seeing all the snow outsite was also so pretty. Very quiet I hope we have a white Christmas !

IMG_5589

Getting yesterday’s stuff at work

Also this afternoon, I had to pick up my clothes at work I had wore yesterday. Other things like my black Timberland boots were also there in the kitchen of the store. But it was also great to see my colleagues again after the party of yesterday.

I also went to my favorite store here called ‘Modemakers’. For years I wanted a nice black faux leather skirt.

Always the moments you don’t have the money … all those things you’ve always wanted are for sale in store. Sor horrible. What did I did wrong? Allong with buying the skirt I got a nice big towel for free because I spent over 50 EUR. It will be THE perfect outfit with a black shirt for my workdays on Sunday when I have to wear black.

Oh yeah , there’s a budget FAILURE this moment on my budgetplanner. In one way it was good that I’m going to move in February. Guess I have to look at my budgetplanner and leave my cards at home. I’m going to take a step back from modern technology and start using cash again.

Thinks to REthink about tomorrow. Now this autism girl is ready for bed, having so much muscles pain again and headache is coming. Tomorrow I have a day of, so I’m glad I can sleep a bit longer !

Have a nice evening !

Love Lucy

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BLOGMAS 4 … here’s the cold, here’s the pain

It’s December! Time to drink a nice hot chocolate, go for a walk in the snow, etc. Every year I really love the winter season because it’s so cosy and lovely (I just love watching the snow fall down). It’s so relaxing for me.

It’s kind of watching a lava lamp and watch the color fall down. As an autistic girl it’s so good to clear my head.

This year

This year it’s so different. This winter loving girl is now wishing I was in Florida and could be in the sun all day.

Since a few months now I have some serious pain like everywhere in my body (neck, shoulder, arms, legs, feet, …). Just everything hurts, when I sit down, walk around, sleep.

Last week I went to my doctor and he took some blood to check if I had rheumatism. All test of the blood were negative, so regarding him everything was okay. He just send me home with some iron pills I have to take for 2 months.

I know it’s just a few days since I took the first pills, I feel more pain everyday. So horrible.

When I’m at work as a shoeseller I have to take 3 extra pills to get me through the day, and not make me cry because I have so much muscle strain.

I also feel like I’m having one migraine after the other. It’s so crazy.

Okay, I know it’s wrong to play for doctor by using Google. A few family members have some mucles problems and a few years ago before I was diagnosed with autism they thought I was having fybromyalgia too. 

Fybromyalgia or not?

The next few weeks I’m going to wait how it all will end with the iron pills but I don’t expect a mirable from them.

symptoms

Afbeeldingsresultaat voor fibromyalgia symptoms

A few of the symptoms above I have, but mostly it’s because of my autism. At least that’s what I always think.  Others I just can say I have them since a couple of months (Yeah I know a long time but doctors are not my best friends).

One by one I just can say ‘YESSSSS, I have that’. So I end up with saying ‘yes’ to every single of the 25 mentioned above.

So why I’m I still sitting here and writing a blog with a lot of pain (toke 3 pills for the pain today)?

Everybody is saying ‘see another doctor’ but I don’t trust that much people to touch me and come close to me. I just can’t go to the hospital without preparation and knowing what will happen. So many stress I have from doctors, it’s just not normal anymore.

Guess I will be sitting here for a few months and just bite me through the days, and surviving on pain medication.

Life as a girl with autism is hard, so hard!

And you?

Anyone else that’s reading my blog that have to combination of #rheumatism or #fibromyalgia and have some tips? Tips like what have you done before the diagnose or what do you have to go through in the hospital to get the diagnose?

Thanks for reading ! Love Lucy xx